Dr. Seigle

(Written in February 2009)
Saw Dr. Seigle yesterday.  I liked him, he’s meticulous and careful, also willing to use intuition.  I came out feeling overwhelmed & went to Karen and cried & cried.  She held me, curled up on the bed, until I was able to calm down.  On the one hand I feel totally lost — I have no idea what’s going on with me any more — on the other hand I think I’m in good hands, I can just surrender to his program.

Took 25mg imipramine last night.  Dr. Seigle thinks the fear I had with it was a “red herring” and plans to have me raise the dose very slowly.  He is going to Puerto Rico next week.  That scares me a little.  Especially since it’s a complicated week medically: I have an elaborate program for raising some meds and lowering others.

Saw Dr. Seigle yesterday.  He thinks I’m very courageous to keep going in the face of such severe depression.  With Karen I did the same posture I did with Caryn: curled up on the couch around Karen who was protecting my stomach.  I cried a little and then relaxed a lot.  Karen talked to Dr. Seigle last week and said she thought he had a good sense of who I am.  That comforts me.

I was extremely lucky to be connected with Dr. Seigle in Montpelier.  I learned a lot from him, specifically how to be really patient and build the medication up slowly. My biggest difficulty as someone with PTSD, was that I could be triggered into despair or terror by some outside event.  It’s too easy to try to address this by raising or adding medication.  Really what I needed was a platform that kept me stable enough so I could live my life and do the needed healing work.  I now am on three different medications.  I know they work because I’ve tried to modify each one, and found it didn’t work.  There’s no logical reason why taking a tranquillizer would give me more energy than not taking it, but that’s my experience.

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Asking for Help

(Written in February 2009)
Very hard to get up this morning.   I’m tired & nauseous & weak & have no energy or enthusiasm for doing anything.  I did send the email asking for help to Janet, and similar ones to Pat and Ann, and got immediate and wonderful responses.  I also called Judy Brubaker who was very sweet.  “We’ll get you through,” she said.  I felt very moved & softened by the response.

I see Dr. Seigle today.  I sure hope he can help me.  I have no idea what’s going on with me any more.  I can’t even tell if I’m terrified or depressed.  The symptom of terror is the nausea, the symptom of depression is that nothing means anything, everything is hard work, even solitaire and puzzles.   I can barely cook & eat & walk the dog.  I don’t know how long it’s been since I showered or washed my hair, I’ve been wearing the same clothes for weeks.  I have managed to do my 40 minutes of meditation a day, usually in the evening, and it has felt like a refuge.

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Somatic Experiencing

(Written in February 2009)
Session with Caryn.  I collapsed onto the floor and stayed there most of the session.  I said that I wanted someone to take care of me 24 hours a day, that I desperately needed to be touched.  She said it was very courageous of me to allow myself to feel those feelings and to speak the truth.  She suggested that I set up a network of friends who would coordinate visits and bring me food, help walk the dog, share cups of tea.  I started writing an email to Janet but haven’t sent it.  I thought of trying to call Judy Brubaker and panicked.  It sounds like a really good idea, but I think my lack of self-worth is getting in the way.
We also worked on trying to find a resource — my butt and legs continue to work pretty well but everything else has fallen away.  I thought of Mama Greene, and told Caryn about my pain that I think I was special to her and never reciprocated adequately because I was afraid of Mom’s jealousy.  I told her about Magee saying “no you were never that way” and how it felt like absolution.  I could feel a little warmth and tenderness in my heart, then it felt raw and vulnerable.  I was able to breathe in and out of it.  Caryn says my body is much softer, that I’m letting go of a lot of body armor.  I just feel lost.  She says it’s possible to heal, I hope she’s right.

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Somatic Experiencing

(Written in February 2009)
Session with Caryn.  I spent a lot of it with her sitting in the corner and me leaning back against her, relaxing as much as possible.  Trying to let my body learn what it feels like to feel really safe and held.  Frantic parts of me were upset that if I don’t do something I’ll never get better.  Another part of me knows that learning to be deeply relaxed is very healing — as I used to do with Brad.  And I can only do it with someone who can provide a witness and a container.  Caryn asked what would help me feel safe, and I said to have someone with me all the time.  She said I was learning to have that be the earth, the earth that I’m connected to all the time, that holds me and doesn’t let me go.  So I’m practicing giving my weight to the earth.  When I left at the end of the session I felt much more present, not so dissociated.

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Struggle with Medication

(Written in February 2009)

Sunday
Bad night.  Woke several times with hot flash & fear.  I haven’t a clue what to do.  I wish I had a meds person I could count on.

Wednesday
Today I see Dr. L for the last time.  I did get a return message from Bill Cote, and a name from Karen, Eliot Seigle, who we hope will be able to help.
Spent part of the time with Karen strategizing, and part curled up on the couch, trying to give my body an experience of being held safely.

Monday
OK night, thank god.  Dr. Seigle called at 9:30PM and it was a relief to talk to him.  I have an appointment to see him on Thursday and I’m sure that helped.

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Terrified

(Written in January 2009)
Woke in fear, took 50 Seroquel, later took .5 Ativan.  So now I’m sleepy.  And nothing to say.  Nothing to hold on to any more either — I’m totally bereft of resources — I didn’t even do the 20 minute meditations yesterday.
My psychiatrist said she’s taking some time off to adopt a baby so I have to find someone else to supervise my meds.  I called Karen, Lore, and Janet, but no one’s called back.  The news is discouraging, there doesn’t seem to be anybody

I’m exhausted and terrified and weak.  I feel hungry, but I did cook and eat eggs & rice, washed dishes, brought in wood, dumped compost.  Last night I tried going through my journal for last fall, writing in the various medications, but I don’t see any pattern at all.
If there are any beings out there who wish me well, please bring me/ show me something that will help.

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Bad Night

(Written in January 2009)

A bad night.  Yesterday was pretty horrible.  Long stretches of no meaning, waves of discouragement and despair.  I keep bringing my mind to the present moment, or to a prayer or affirmation.  It takes everything I’ve got to keep cooking and eating, getting wood, walking the dog.  I can’t do anything that requires making decisions or moral/emotional strength like balancing the checkbook, setting up new file folders etc [I still haven’t done that and it’s March 20]

Called my psychiatrist & left message to say that a couple of nights ago I had taken 250 Seroquel at bedtime and woke terrified 45 min later. [This was my first inkling that the Seroquel was not good for me.]

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Affirmations

(Written in January 2009)
Karen was very helpful.  I was stuck in that awful place of: I try something, look to see if it’s working, and if not I conclude I can’t do it.  That old old pattern.  Karen kept saying I WAS doing it, I’m doing things differently.  I had to make her say it several times and then I began to say it myself.  So I have a new set of affirmations, and I remind myself again again, just because something doesn’t work right away doesn’t mean it doesn’t work.

AFFIRMATIONS:
It is possible to heal
I am doing things that will help me heal
I am doing things differently
from how it was in my childhood
from what I used to do
I am telling the traumatized baby that I will stay with her, I won’t go away, I will give her all the time and space she needs.  I am committed to her welfare.

I am reaching out to my friends and they are delighted to help me.

When I feel that overwhelming discouragement — that is the introjected voices of Mom & Dad.  I don’t have to try to convince then they are wrong — that’s a negative feedback loop.  What I need to do is tell them to get out, go away, and slam the door behind them.  I CAN DO THIS.

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Bipolar 2

At the end of 2008 my psychiatrist said she thought I was “bipolar 2”.  Kayla looked it up on the web and said it was repeated depressions without the manic part of the cycle.  It totally freaked me out.

(Written in January 2009)

I think what’s being so hard about the bipolar 2 diagnosis is the feeling of being helpless and vulnerable to the ebb and flow of brain chemistry.  With PTSD — understanding the physiology gives me a way to manage symptoms, and some action I can take that will bring some healing and improve my ability to live with ease and grace and compassion.  And I have some sense of a real self, a core self that I can return to and rest on.  But if feeling like my “real self” is dependent on medication, then who am I really?  Is there any “core self” that provides me with an axis for my integrity?  How am I different from the alcoholic who drinks to make the difficult feelings go away?  Well, at least I’m not creating havoc and misery in the lives of people around me.  I also think of the father, dying and in coma, who emerged briefly before he died to say to his daughter “Tell your mother I love her, and that I’m all right.” When the autopsy was performed he had almost no brain left.  So the mind is not the same as the brain, and the self is not confined to the body.  Maybe what I am calling my “core self” is something larger than the body, the morphic field, a consciousness that rides my body as a person rides a horse, that chooses direction, that chooses not to go down the path of catastrophizing, that keeps reminding me to stay in the present, to invoke lovingkindness, to “soften around” whatever is happening.  This part of me can’t choose to feel differently, but I can choose where to put my attention.

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Ordeal

(Written in January 2009)

I feel like my courage and strength have been broken by this last ordeal, that I have been unable to bear the magnitude of the pain entrusted to me.  I think well there are lots of others who have collapsed under pain that was unbearable.  I’m just trying to manage a jarred mechanism of body & nervous system that makes it hard to cope.  There are lots of other people out there struggling with mental illness, some hospitalized some not.  I think of Louise, also struggling with bipolar and with PTSD, and with much worse heavy metal poisoning.  And Eleanor.  And Randi.  And I am pitying myself, and also judging myself for not doing better.

Yes, I’m feeling ashamed that it’s being so hard just to keep going.  I realize I’ve been imagining that what I’m up against is much bigger than what other people are up against — because of the way the infancy state gets triggered — but that’s not true.  I’m sure there are people out there whose lives are harder than mine — Eleanor for example — and people whose lives are easier — I think of Janet and Kayla who’ve both been depressed but come out of it pretty quickly.  I wish that thinking of other people who are having a hard time brought a sense of fellowship as it has in the past, but it doesn’t.  Instead I feel like there’s no one left to help me, and I really need all the help I can get.  It’s also true that there’s no way I can compare my inner experience with someone else’s.     OK. one day at a time. loving kindness.

Signs that I am doing better
Able to get out & exercise
Fixing & eating decent meals
Sleeping OK
Being able to act cheerful when I don’t feel it.
Feeling better after spending some low key time with someone e.g. Janet
Calling people for help, and just asking for company snowshoeing or for a cup of tea.

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