Finding Support in Unlikely Places

I’ve been sick for a couple of days.  Headache and ache all over.  This flu announced itself by two days of bottom of the pit depression.  Friends would try to cheer me up and I would just cry.  I spent yesterday mostly sitting on the couch, reading and playing solitaire.  But it was such a relief to be sick and know that was what the depression was about.  It’s happened to me before, and when the cause is revealed to be physical, I take care of myself, instead of trying to make the depression go away.  I didn’t feel well enough to type.  I did walk out to the mailbox.  That’s the first time I’ve done it since Bella died.

I went back and read some of my blog.  I’m always surprised to find that it comforts me.  In one post there was a link to Maria Farantouri singing “Asma Asmaton” from a cycle of songs about Mauthausen, a concentration camp in Austria.  The YouTube video shows Mikis Theodorakis conducting, and there were two other songs from Mauthausen, so I listened to all three.

I don’t know how I found the video of Kaelynn and her story of abuse, being bullied and how she can now stand up for people who are hurting and being bullied.  Other videos showed up with similar stories.  I haven’t tried to watch them all.  There’s one with a cut and bleeding arm that I haven’t been able to watch yet.  Cutting myself was the story I told on the stage in Journey into Courage.  I talked about identifying with soldiers with PTSD.  At that time, early 1990’s, I had no idea that I too was suffering from PTSD.

I’ve been trying to figure out why these stories of painful experiences make me feel so strengthened.  The video of Theodorakis and Farantouri, though it was made in 1975, it’s in black & white, the quality isn’t great.  Yet their energy and seriousness are like a ritual that brings beauty out of a horrible tale of human cruelty.  Their passion moves my heart.  That a Greek poet, imprisoned in a concentration camp, should write poems about how love shows up, even in such hideous circumstances, and that they should be given musical life with such power, makes me feel that beside the truth that human beings can do unbelievably cruel things to other human beings is the other truth of love.  The three songs have become known as “The Mauthausen Trilogy” and become immensely popular.

The first song “Asma Asmaton” (Song of Songs) is a Greek man singing of his love for a Jewish girl:  “Nobody knows how beautiful she was.”  The second song is about a Greek man named Antoni who helps a fallen Jew when they are being forced to carry heavy rocks.  The third is “When the War is Over.”

The torn pieces of paper with her story written by hand, gives an immediacy to Kaelynn’s story of being abused by her family and then bullied at school. At the end she says “I now stand up for the weak, the hurt, the lost, and the bullied.”

Sami, age 16, shares a long painful story, bullied because she was depressed, yet at the end she can say: “I am scared but that’s OK!  So far each thing has made me stronger! wiser! more loving!”    There was a link to this story, but when I went back to check it, YouTube said “that video is no longer available.”

One more thing that strengthened me was a 10 minute TEDx talk by Ash Beckham on   coming out of the closet.  She talks about being real, being authentic, and I realize that’s why all these videos strengthen me.  People being real and speaking their truth.

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Still Struggling

(Written in Hunger Mountain Co-op in Montpelier, before I see Karen for a therapy appointment)

Still struggling with depression.  Mostly OK as I drove over, but it’s a grim grey day.  I realized I don’t see any people, I see bleak fields, dead trees, abandoned houses, cars.  Of course there are houses that are OK, but no people visible.  So when I’m alone, driving through a bleak landscape, how can I be doing God’s work?  “I’m gonna live … so God can use me…”   Are you using me god?  Are you there?  Do you have some plan that redeems all the horrible things that are happening in the world?

At least here in the café are people.  There’s good healthy food here, and people doing good with their lives.

So, God, can you help me out here?

Dear Jenny — you are appreciating and loving all the things you see.  You are not doing anything to hurt anybody, you are not hiding your pain through addiction or abuse of someone else.  You are doing your best to make the world a better place.  You are not judging or criticizing anyone.  Just as you are, you are holding a vision of a world that works for everyone.  None of this is trivial.  Without doing anything more, you are making a big difference in the world.

(the next day)

“Blessed Lord Jesus have mercy on me.”  Repeating that helped me get out of bed.  Everything’s covered with snow, about an inch.  Lots of birds coming to the feeders.  Karen said that I am still grieving, that I have good reason to feel sad and tired.  I think I was hoping I was out of it, having one good day when I was comfortable with my life gave me the illusion I could stay that way.  Maybe I’m even making myself wrong — “OK, you’ve felt sorry for yourself for long enough, now it’s time to move on.”  No.  I want to honor the loss of Bella — she brought brightness and humor to my day, she loved me and I loved her.  And I need to honor the rest of my losses, so many, and many that I never mourned properly because I trivialized them.

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Taking Care of Myself IS my God-given Task

For about the last five days I’ve been pretty bummed out and discouraged with myself for being stuck in depression.  Lynelle was able to help me shift it.  She told me that taking care of myself is my first priority.  I didn’t want to listen to her, I was feeling very strongly that Jenny wasn’t worth taking care of.  But I did remember times when I understood that Jenny, troublesome as she is, is my God-given task.  Finally I was able to relax and accept it, it felt like a bunch of disorganized blocks fell into place.  Then I was able to be OK with my current depression.  I see now that I was angry at myself for not being able to do anything that was visible, exciting, worthwhile.  Once Lynelle helped me see it, I was able to let that go, and accept that taking care of myself, working to heal myself is my God-given task, is my vocation along with the parallel vocation which is Neskaya.

Looking back, I see that I had tried to see myself, knowing that one possibility was that I was angry at myself for being depressed, but it didn’t resonate, didn’t bring that relaxing, connecting sensation which means “Of course.”  It took Lynelle’s help for me to see that I wasn’t so much angry at myself for being depressed, I was angry — maybe even partly with God — that I wasn’t doing anything “worthwhile.”  I have been begging god to show me what I’m supposed to be doing, and I can imagine God, very exasperated, saying: “The synchronicity of the Hospice training wasn’t enough?  Barry suggesting a depression support group wasn’t enough?  It’s a problem that you don’t have anything immediate?  Patience, my dear Jenny, patience.”  Shall I laugh or cry?

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Living with PTSD

It’s my 50th college reunion next year.  I have no wish to go, but I wrote a piece for the record book.  Thought I might as well post it here.

I was nearly sixty when I realized I had been living with Post-Traumatic Stress Disorder.  This was the root of many long severe depressions, periods of terror, several breakdowns.  Medication made a big difference, I felt so much better, life was so much easier, and I couldn’t remember ever feeling this way.  That lasted as long as I kept to a life that was limited by what my depression could endure, but as soon as I started trying to have a larger life, things got tough again.

A friend whose life had been improved by doing Somatic Experiencing, a method of healing trauma developed by Peter Levine, kept insisting that I had also been traumatized.  I thought that wasn’t possible, since even though both my parents were alcoholics, neither of them was violent.  Finally, I started reading Peter Levine’s book, Waking the Tiger, where he describes his research into the physiology of trauma, and how animals heal.  Peter Levine says an infant can be traumatized by being left alone in a cold room.  I was forced to acknowledge that I had all the symptoms of PTSD, except for visual flashbacks.  As I began working with Somatic Experiencing practitioners, I started to realize that the times when I felt helpless and hopeless were emotional “flashbacks” to infancy.  In order to heal, I had to learn a lot about the physiology of trauma.  I’ve worked with five different practitioners, and am enormously grateful to Caryn McHose in Holderness, New Hampshire, for the level of healing I’ve been able to do.

Two years ago I started writing a blog.  It’s on WordPress and the URL is jennydeupree.com.  I’ve put all this information in the Record Book in case it turns out to be helpful for anyone who has been struggling with the symptoms without knowing what was happening.

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The Down Side of “Pushing” Myself

This morning I just didn’t want to go on.  I felt bad about dumping my negativity on my good friend Elizabeth — we always talk on Tuesday morning, and she has been a tremendous support for me — in spite of that, I still felt bad but didn’t know what else to do other than tell her the truth.  I started crying as soon as I heard her voice.  I read her yesterday’s post, and while I was reading I realized that I had pushed myself to do things on Saturday, and again yesterday.  In the morning I had pushed myself to complete numerous small errands — cash check, get stamps, etc.  In the afternoon I pushed myself to walk alone, going up to the Rte 3 hiking trail which didn’t have a lot of memories of Bella.  I started out walking fast, determined to get to the halfway mark — after all, I had done it last week with a friend.  Turns out it was a bad idea.  I couldn’t keep it up, I turned back at Skogumchuk Brook, and I started feeling nauseous.

While telling Elizabeth about all this, I cried a lot.  Elizabeth said there was a storm passing through and I should just let myself precipitate, which made me laugh, and was also permission to cry as much as I needed to.  When I finally stopped, she said that I didn’t sound like a person who didn’t want to live, I sounded like a person who was tired and alone.  She validated that the experiences I had the last few days were difficult.  She spoke very eloquently about what it is that I do when I’m teaching circle dance, which made me accept the possibility that I might be doing something valuable.  She said I have the skills to create and give birth to an experience for the circle of dancers.  As my therapists have often pointed out, if I can do it easily, I don’t value it.

I reminded her of her wonderful letter when she told me I was “generous, committed, and visionary.”  She sent it to me in 2005, and forced me to start revising my image of myself.  Later I started creating a document that contained all my good experiences, and all the good things people had said to me about myself.  I called it “Resource” because a “resource” in Somatic Experiencing is something that makes you feel more calm and steady and centered.  So I told Elizabeth that it was probably time for me to go back and read my “Resource Notebook,” and she said “You are so persevering.”  I started to cry because that was just what I’d been judging myself as not being.

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What’s the Point of Going On?

I haven’t posted much to the blog in a long time.  Bella’s dying and death were difficult and full of conflict, complicated by the older traumas they triggered.  It was hard to write when I was depressed.  A lot of energy went into taking care of Bella, and finding support people for myself.  A lot of daily chores, like dealing with the mail, and personal care things, like doing laundry and washing my hair, got pushed to the end of the list.  I also spent a lot of time working on puzzles and playing solitaire, hoping that that distraction for my neocortex would help me integrate the losses.  Typing journal into the computer really got difficult when I got to the week she died.  I usually try to stay no more than a month behind.          — Who cares about this?  What’s the point of going on?  —   Those questions have come up a lot recently.  We even sang a hymn (written in 1988) that expressed doubt about god.  “The poor suffer, the rich thrive … Is god alive?  Does god care?”  It really expressed how I was feeling.

Barry’s sermon today was on strength and persistence.  Stories from the Bible, and from people he knows, who persisted and used strength to get what they want.  Makes me feel lazy and weak and guilty.  Clearly I think I should be pushing myself harder to “get things done.”  And I’m not doing it.  I haven’t pushed myself to walk alone, I haven’t pushed myself to sort out mail or balance my checkbook.  I have pushed myself to keep calling friends for help.  I did push myself yesterday to see Pat — which was a mixed bag — and to drive to Lyndonville to do “Break the Chain.” That felt good but I only got to do it once and was intimidated by all the stylish women with high heels and makeup.

Pat is a good friend, she’s very supportive and I feel safe with her.  But she talked about “disciplining herself to get things done,” and she also talked about how easy cooking can be.  Unfortunately, those particular issues are very difficult for me.  I suspect my difficulty is related to my trauma, but don’t know exactly the mechanism.  This makes it hard to validate myself.

I’m seeing that another thing that made yesterday difficult was that I called a friend for help and never heard from her.  I wish I weren’t so sensitive to that sort of thing.

Yes, I do think I have used strength and persistence in the service of my healing.  What’s confusing is that letting myself rest, letting myself off the hook, not pushing myself is also part of my healing.  It’s a very tricky balance.

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Faith

Barry’s sermon last Sunday was about “faith,” if you had faith the size of a mustard seed you could move mountains.  Someone in the choir spoke up, saying she agreed, maybe she even said having faith is easy?  simple?  Anyway she was in her relentlessly positive persona.  They talked about how it wasn’t about “size.”  I was uncomfortable with the whole thing.  I don’t have faith like that.  I started to feel that you either had faith or you didn’t, there was no way to build incrementally, and I certainly didn’t have faith or I would not be depressed.  So I was making myself wrong.  Only later was I able to look at it objectively.

So do I have faith?  Yes, I have faith in the ultimate goodness of the universe, the goodness of the spirit that is creating the universe.  I have faith that all things work together for good, but that doesn’t mean that we will all be safe and happy.  It does mean that nothing is wasted.  It does mean that we are all immortal, or we are all one, (or both) because how else could an ugly and painful life, I think of Barry who killed Evie and himself, how could such a life be redeemed?  I do have faith — I’m not interested in moving mountains, but sometimes I wish I could magically bring myself out of depression, or even better bring it about that we would have world peace, justice, and environmental sanity.  But I do have faith that depression is not some evil thing that afflicts me, depression is my god-given task.  And my job is to stay present and bring compassion to it.

I offer myself to this process of grieving for Bella, and for all the other losses of my life that her death opened up.  I’m willing to experience grief, emptiness, depression, despair, pain in the heart — in the faith that by experiencing them I process them, so the energy becomes available for living.

Looking back on this attempt to understand faith, what I see is that faith is like trust, or maybe it even is trust, it’s a choice, an action, not comfortable feelings.  Even when I’m depressed, like today, I can still CHOOSE to have faith in the complex, interconnected and beautiful universe that I know about.

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It Gets Harder

My heart hurts.  Grieving for Bella has gotten harder.  Thursday I was depressed.  Friday I started the day feeling totally empty, feeling like Bella had never lived.  I couldn’t remember what she looked like.  I couldn’t feel her spirit.

Then I thought that a lot of my grieving in this lifetime has been for things I never got, not for things I had and lost.  I called Lynelle and told her I needed a hug.  She came right away and hugged me while I cried.  I told her about the emptiness, and she said that this was what she had been worried about, that Bella’s death would trigger my abandonment trauma.  She said she was glad to see how strong I was at first, when I could feel Bella’s spirit and the love we’d shared.  It actually helped a lot to be able to tell myself “This emptiness is about Mom not Bella.”  Then I was able to be with it instead of fighting it.

This morning the emptiness was here again.  I think I may not be able to work on it until I see Caryn for Somatic Experiencing.  I worked on a project of picking out the best pictures of Bella so I could print them out.  Sitting here, I remembered her running to me in the woods, her standing on her hind legs and shrieking Ee! Ee! Ee! when I got back after a time away.  Her ecstatic wiggling when she realized it was me.

My heart’s hurting again.  I realize that I’ve been doing the S.E. technique called “pendulating,” going back and forth between the trauma, and the resource which today is good memories of Bella.  I hadn’t realized that “pendulating” is actually something the brain does naturally when we’re not interfering.  That’s why grief comes in layers, times of pain, and times of normality when you can integrate the pain.

 

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Dying To Be Me

My brother came for a visit and brought me the book Dying To Be Me.  I found it to be very helpful and inspiring.  It’s the story of Anita Moorjani’s struggle with cancer, her near death experience, and what she learned from it.  Check it out!

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Today’s “Daily Good”

lifted my spirits.  When I think about my loss, I feel sad, teary.  When I think of Bella, I feel love.

http://www.dailygood.org/story/531/be-love-jennifer-pastiloff/

I’ve also been inspired to add a category “Interesting Links”  because looking over archived posts I find a lot of posts that are just a link to something that made me laugh, or happy, or moved, or heartened me in some way.  This gives me an easy project I can do, something I need badly at this moment.

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