{"id":6302,"date":"2019-09-18T13:50:07","date_gmt":"2019-09-18T17:50:07","guid":{"rendered":"http:\/\/jennydeupree.com\/?p=6302"},"modified":"2019-09-18T13:50:07","modified_gmt":"2019-09-18T17:50:07","slug":"a-dying-life-that-is-faithful-to-the-struggle-of-being-human","status":"publish","type":"post","link":"https:\/\/jennydeupree.com\/?p=6302","title":{"rendered":"&#8220;A dying life that is faithful to the struggle of being human&#8230;&#8221;"},"content":{"rendered":"<p>I stayed feeling pretty bummed out until I got to the chapter: What does Death ask of us?<span class=\"Apple-converted-space\">\u00a0 <\/span>Then it sounded like there was something I could do with what time and energy are left to me.<span class=\"Apple-converted-space\">\u00a0 <\/span>When I watched (<a href=\"http:\/\/jennydeupree.com\/?page_id=31\" target=\"_blank\" rel=\"noopener noreferrer\">and wrote down<\/a>) how my parents behaved in their last days together, I was determined to do better.<span class=\"Apple-converted-space\">\u00a0 <\/span>Given how many times I have wanted to die, how most of the time death looks like a relief, an end of the chore of getting through the days, I haven\u2019t ever wanted to postpone dying. <span class=\"Apple-converted-space\">\u00a0<\/span><\/p>\n<p>I have been thinking about how to use what\u2019s left to me, now that the life I had in Franconia is clearly gone, and has been dying for a while because I\u2019ve been getting more and more tired.<span class=\"Apple-converted-space\">\u00a0 <\/span>Much as I loved creating dance programs, making centerpieces, celebrating the seasons, changing the hangings, I had to keep dropping things as I got tireder and tireder.<span class=\"Apple-converted-space\">\u00a0 <\/span>Now it\u2019s clear that that life has died.<span class=\"Apple-converted-space\">\u00a0 <\/span>I suspect that I should probably have a memorial service for it, but am not sure how I would do it.<\/p>\n<p>So now what do I do?<span class=\"Apple-converted-space\">\u00a0 <\/span>I knew one of the projects I wanted to do was read my entire journal output.<span class=\"Apple-converted-space\">\u00a0 <\/span>That would mean typing up <a href=\"http:\/\/jennydeupree.com\/?p=5073\" target=\"_blank\" rel=\"noopener noreferrer\">what never got typed in the years between 1995 and 2003<\/a> when I began to type up a lot of what I wrote.<span class=\"Apple-converted-space\">\u00a0 <\/span>I suppose I could start reading from the earliest writings, and not worry about those untyped years.<span class=\"Apple-converted-space\">\u00a0 <\/span>At least begin the job.<span class=\"Apple-converted-space\">\u00a0 <\/span>I think I have some idea of integrating my life, pulling the pieces together, doing something like what I did with the <a href=\"http:\/\/jennydeupree.com\/?p=5507\" target=\"_blank\" rel=\"noopener noreferrer\">grandmother patches<\/a>.<span class=\"Apple-converted-space\">\u00a0 <\/span>I expect that a lot of what I wrote will provide material for blog posts.<span class=\"Apple-converted-space\">\u00a0 <\/span>I\u2019ve also thought about dialoguing with my younger self, telling her that she&#8217;s not worthless, she&#8217;s OK, mistakes and failures are just part of living, she&#8217;s been up against a huge monster, PTSD before brain and nervous system have matured.<\/p>\n<p>I do worry that it\u2019s being very self-involved to spend all that time with my own journals, when there is so much going on in the world where help is needed.<span class=\"Apple-converted-space\">\u00a0 <\/span>On the other hand, I read something by Oliver Sacks, where he says when he had a definite amount of time left, he stopped reading the newspapers, etc.<span class=\"Apple-converted-space\">\u00a0<\/span>and I thought maybe that\u2019s all right for me.<\/p>\n<p>Oliver Sacks, from an interview in the <a href=\"https:\/\/www.nytimes.com\/2015\/02\/19\/opinion\/oliver-sacks-on-learning-he-has-terminal-cancer.html?_r=0\" target=\"_blank\" rel=\"noopener noreferrer\">New York Times<\/a>:<\/p>\n<blockquote><p>I feel a sudden clear focus and perspective. There is no time for anything inessential. I must focus on myself, my work and my friends. I shall no longer look at \u201cNewsHour\u201d every night. I shall no longer pay any attention to politics or arguments about global warming.<\/p>\n<p>This is not indifference but detachment \u2014 I still care deeply about the Middle East, about global warming, about growing inequality, but these are no longer my business; they belong to the future. I rejoice when I meet gifted young people \u2014 even the one who biopsied and diagnosed my metastases. I feel the future is in good hands.<\/p><\/blockquote>\n<p>This passage from Die Wise gives me guidance on how to live what time is left to me. \u00a0I think it will be years, I&#8217;m in pretty good physical shape, but of course it could happen any time.<\/p>\n<blockquote><p>from Die Wise, p299<br \/>\nWe stop trying to control our dying finally at the point when we have little or no stamina, energy, give-a-shit, and time to give to the honorable and immensely necessary project of dying well, dying lucidly and deliberately, dying purposefully and surely and wisely. &#8230;<span class=\"Apple-converted-space\">\u00a0 <\/span>Dying in our time and place means having to live all the lunacies and sorrows and slings and arrows described in this book.<span class=\"Apple-converted-space\">\u00a0 <\/span>It asks of all of us [to] grow an immeasurably able, cunning soul to know the hues of madness that color our thousand ways of not dying as we die and to resolutely die anyway.<span class=\"Apple-converted-space\">\u00a0 <\/span>Learning this skill, we could love this part of the human world that is our own, all its human frailties and unwillingness to live when life is hard anyway.<span class=\"Apple-converted-space\">\u00a0 <\/span>We could be sad, a trustworthy achievement.<span class=\"Apple-converted-space\">\u00a0 <\/span>We could bequeath to the young people attending the end of our days \u2014 often at too much of a distance \u2014 and to the children and babies who will have no memory of us at all a story of a dying life that is faithful to the struggle of being human when the seduction and the pull is so much otherwise, a story so true and indelible that it shines best and brightest in the darkest time, like the stars in a clear, country night sky.<span class=\"Apple-converted-space\">\u00a0 <\/span>This is what is at stake with every terminal diagnosis, every treatment decision, every home death and hospital death, every funeral and memorial service.<\/p><\/blockquote>\n","protected":false},"excerpt":{"rendered":"<p>I stayed feeling pretty bummed out until I got to the chapter: What does Death ask of us?\u00a0 Then it sounded like there was something I could do with what time and energy are left to me.\u00a0 When I watched &hellip; <a href=\"https:\/\/jennydeupree.com\/?p=6302\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5,11],"tags":[],"class_list":["post-6302","post","type-post","status-publish","format-standard","hentry","category-healing","category-present-day"],"_links":{"self":[{"href":"https:\/\/jennydeupree.com\/index.php?rest_route=\/wp\/v2\/posts\/6302","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jennydeupree.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jennydeupree.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jennydeupree.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jennydeupree.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=6302"}],"version-history":[{"count":0,"href":"https:\/\/jennydeupree.com\/index.php?rest_route=\/wp\/v2\/posts\/6302\/revisions"}],"wp:attachment":[{"href":"https:\/\/jennydeupree.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=6302"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jennydeupree.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=6302"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jennydeupree.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=6302"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}